Please consider supporting CHERUBS by purchasing this lullaby. Funds raised will either be used towards CDH research of the Family Support Fund.
Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth.
Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues.
CHERUBS is the world's first, oldest, and largest CDH non-profit organization. We are truly a grassroots organization - CDH families creating something out of nothing when there was no other CDH group, information and services in 1995.
Note from the Composer/Artist:
I first became aware of CDH when my friends Neil and Amy Rubenstein's son, Aidan, was
diagnosed with the birth defect. Like a great many people, I had no knowledge that
something like CDH existed until it happened to someone I knew. Raising awareness is so
crucial to helping research, detect, and even one day prevent this condition.
I wrote "A Fighter's Lullaby" with two intentions. ONE, to compose a lullaby to raise money
for the CHERUBS organization, and TWO, to send a message of love and support for those
heroes who deal every day with the effects of CDH. It is my hope that this song will serve as
a message of solace and encouragement, not only to the children who are diagnosed, but also
to the parents who soldier bravely through the losses and hardships that it brings. To those
who have lost children to CDH, and to those who continue to fight it: may this song be your
light in the present darkness, and remind you that even the most difficult struggle always
reaches an end. Stay strong!
Copyright 2013 Ross Crean/Knight & Thorne Music/ASCAP. All Rights Reserved.
Please note that you are more than welcome to donate more than the minimum $1.89 for this amazing lullaby. Click the "download" link above the mastheah to listen to a short preview of "A Fighter's Lullaby"